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	<title>domingo rogers &#187; Charity and Donations</title>
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	<description>Capturing Life in the Fullest</description>
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		<title>The 4-Hour Workweek &#8211; Beginning the Journey</title>
		<link>http://www.domingorogers.com/2010/01/06/the-4-hour-workweek-beginning-the-journey/#utm_source=feed&amp;utm_medium=feed&amp;utm_campaign=feed</link>
		<comments>http://www.domingorogers.com/2010/01/06/the-4-hour-workweek-beginning-the-journey/#comments</comments>
		<pubDate>Wed, 06 Jan 2010 05:23:38 +0000</pubDate>
		<dc:creator>Domingo</dc:creator>
				<category><![CDATA[100 Days To Dynamically...]]></category>
		<category><![CDATA[Charity and Donations]]></category>
		<category><![CDATA[Faith]]></category>
		<category><![CDATA[Money]]></category>
		<category><![CDATA[Quotes and Such]]></category>
		<category><![CDATA[The 4-Hour Workweek]]></category>
		<category><![CDATA[Work]]></category>
		<category><![CDATA[Tim Ferriss]]></category>

		<guid isPermaLink="false">http://www.domingorogers.com/?p=295</guid>
		<description><![CDATA[One of my gifts this Christmas was the book, The 4-Hour Workweek, which my Na-Na gave to me.  I began reading the book the next day and am on Chapter 9 currently.  I realized while we were on our “vacation” (I’ll explain my sarcasm in a moment) up in Michigan, that I needed to start [...]<p><a href="http://www.domingorogers.com/2010/01/06/the-4-hour-workweek-beginning-the-journey/">The 4-Hour Workweek &#8211; Beginning the Journey</a> is a post from: <a href="http://www.domingorogers.com">domingo rogers</a></p>
]]></description>
			<content:encoded><![CDATA[<h4>One of my gifts this Christmas was the book, <em>The 4-Hour Workweek</em>, which my Na-Na gave to me.  I began reading the book the next day and am on Chapter 9 currently.  I realized while we were on our “vacation” (I’ll explain my sarcasm in a moment) up in Michigan, that I needed to start doing the work that is outlined by the author Tim Ferriss.  I realized that I need  to ask myself the hard questions, be brutally honest with my answers and make changes to achieve the life that I want and that I want to provide my family.   So begins my introspective and journey.</h4>
<p><span id="more-295"></span></p>
<h3>Definitions and Acronyms for me to remember:</h3>
<p><strong>NR </strong>= New Rich</p>
<p><strong>DEAL</strong> &amp; <strong>DELA</strong></p>
<p><strong>D</strong> for Definition</p>
<p><strong>E</strong> for Elimination</p>
<p><strong>A</strong> for Automation</p>
<p><strong>L</strong> for Liberation</p>
<p><strong>W4W</strong> = Work for work’s sake</p>
<p><strong>Dysphoria </strong>is the direct opposite of Euphoria</p>
<p><strong>Eustress</strong> is a term coined by <a title="Endocrinologist" href="http://en.wikipedia.org/wiki/Endocrinologist">endocrinologist</a> <a title="Hans Selye" href="http://en.wikipedia.org/wiki/Hans_Selye">Hans Selye</a> which is defined in the model of <a title="Richard Lazarus" href="http://en.wikipedia.org/wiki/Richard_Lazarus">Richard Lazarus</a> (1974) as <a title="Stress (medicine)" href="http://en.wikipedia.org/wiki/Stress_%28medicine%29">stress</a> that is healthy, or gives one a feeling of fulfillment or other positive feelings. Eustress is a process of exploring potential gains. <a href="%28http:/en.wikipedia.org/wiki/Eustress%29#utm_source=feed&amp;utm_medium=feed&amp;utm_campaign=feed">(http://en.wikipedia.org/wiki/Eustress)</a></p>
<h3>Key thoughts for me to remember that strike a cord with me:</h3>
<p>D:  To retire early or young.</p>
<p>NR: To distribute recovery periods and adventures (mini-retirements) throughout life on a regular basis and recognize that inactivity is not the goal.  Doing that which excites you is. (Ferriss 22)</p>
<p>D:  To make a ton of money.</p>
<p>NR:  To make a ton of money with specific reasons and defined dreams to chase, timelines and steps included.  What are you working for? (Ferriss 23)  <em>For many years this had been my focus to simple make a ton of money.  Now though, because of personal and spiritual changes that have gone on in my life, my focus is still to make a ton of money but it is to accomplish specific goals in the area of giving, starting charities or non-profit organizations and pursue activities alone, with my wife and with our kids that we haven’t and can’t do now.</em></p>
<p>D:  To have freedom from doing that which you dislike.</p>
<p>NR:  To have the freedom from doing that which you dislike, but also the freedom and resolve to pursue your dreams without reverting to work for work’s sake… (Ferriss 23 and 24)</p>
<p>Money is multiplied in practical value depending on the number of W’s you control in your life: what you do, when you do it, where you do it, and with whom you do it. (Ferriss 24)  This is the freedom multiplier!</p>
<h3>Let the hard questions begin!</h3>
<p style="padding-left: 30px;"><strong> 2. </strong> How      has doing what you “should” resulted in subpar experiences or regret for      not having done something else? (Ferris 37)  <em>My attending college immediately      after graduating high school and attending the college that I felt my      parents wanted me to attend has been something I have definitely had regretted.  I do have to admit though if it had not      been for me to attend where I did, I would now be married to my wonderful      wife and we wouldn’t have our awesome inspiring kids.</em></p>
<p style="padding-left: 30px;"><strong>3.</strong> Look      at what you’re currently doing and ask yourself, “What would happen if I      did the opposite of the people around me?       What will I sacrifice if I continue on this track for 5, 10, or 20      years? (Ferriss 37)  <em>This is a      hard question.  I am in some ways      already doing the opposite of what the people around me are doing, though I      know I can do more.  I have already      proven to myself that I can have a professional career while only having      attended one year of college.  Do I      want to ever get a college degree?  Defiantly,      but on my terms and where I want to attend! </em></p>
<p><em> </em></p>
<p style="padding-left: 30px;"><em>At the age of twenty I had already gotten married to a woman with two children.  At age twenty-one we had three children.  In the process of fighting against current of what others do I have been all of the following: Call Center Representative (four  times), truck driver, pizza delivery professional, electronics store stock person and sales person, part of a mall cleaning crew, retail associate at two different clothing stores, insurance sales person for three different companies, an outside sales professional at one computer support company, a Regional Account Manager, an Inside Sales Professional twice, and have joined and quit two MLM companies.</em></p>
<p><em> </em></p>
<p style="padding-left: 30px;"><em>I have been on the verge of ending my marriage more than I like to admit.  I have dealt with suicidal thoughts.  Overcoming a particular destructive addictive behavior is a daily fight for me.</em></p>
<p style="padding-left: 30px;"><em>“What would happen if I did the opposite of the people around me?”  When I do it against God’s principles it destroys me and those around me.  When I do it and I am aligned with God’s principles, I am more blessed than I know how to express!</em></p>
<p><em> </em></p>
<p style="padding-left: 30px;"><em>&#8220;What will I sacrifice if I continue on this track for 5, 10, or 20 years?&#8221; If I were to sacrifice and fight against God’s will and principles I would be miserable.  If I continue to only trust marginally in God and His will and not continue to fight the current of mediocrity I too will be miserable.</em></p>
<p>So, why the sarcasm for &#8220;vacation&#8221; at the very beginning of this post?  Simply for the fact that over this next year I am going to strive to enjoy my vacations with as little drama as possible from outside forces &#8211; Here&#8217;s to the beginning of an awesome year!</p>
<p><a href="http://www.domingorogers.com/2010/01/06/the-4-hour-workweek-beginning-the-journey/">The 4-Hour Workweek &#8211; Beginning the Journey</a> is a post from: <a href="http://www.domingorogers.com">domingo rogers</a></p>
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		<title>Helping People That Suffer From NBIA: Video Link</title>
		<link>http://www.domingorogers.com/2009/08/07/helping-people-that-suffer-from-nbia-video-link/#utm_source=feed&amp;utm_medium=feed&amp;utm_campaign=feed</link>
		<comments>http://www.domingorogers.com/2009/08/07/helping-people-that-suffer-from-nbia-video-link/#comments</comments>
		<pubDate>Fri, 07 Aug 2009 22:51:26 +0000</pubDate>
		<dc:creator>Domingo</dc:creator>
				<category><![CDATA[Charity and Donations]]></category>
		<category><![CDATA[Hayflick Lab Campaign]]></category>
		<category><![CDATA[NBIA]]></category>
		<category><![CDATA[Neurodegeneration with Brain Iron Accumulation]]></category>
		<category><![CDATA[neurological movement disorder]]></category>

		<guid isPermaLink="false">http://www.domingorogers.com/?p=118</guid>
		<description><![CDATA[Here is the video of Kevin and his family followed again by the letter from the Fox family. Video &#8211; Person of the Week: Fox family Dear friends, Imagine waking up and not being able to walk, talk, or eat. Our 11 year old son Kevin faces these challenges every day. Currently there is no [...]<p><a href="http://www.domingorogers.com/2009/08/07/helping-people-that-suffer-from-nbia-video-link/">Helping People That Suffer From NBIA: Video Link</a> is a post from: <a href="http://www.domingorogers.com">domingo rogers</a></p>
]]></description>
			<content:encoded><![CDATA[<h3 style="text-align: center;">Here is the video of Kevin and his family followed again by the letter from the Fox family.</h3>
<h3 style="text-align: center;"><a href="http://abclocal.go.com/wtvd/video?id=6953966">Video &#8211; Person of the Week: Fox family</a></h3>
<h2 style="text-align: center;"><a href="http://abclocal.go.com/wtvd/video?id=6953966"><img class="aligncenter size-full wp-image-124" title="Fox Family Video" src="http://www.domingorogers.com/wp-content/uploads/2009/08/FoxFamilyVideo.jpg" alt="Fox Family Video" width="223" height="126" /></a></h2>
<div><span id="more-118"></span></p>
<div>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Dear friends,</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><strong><span style="font-family: 'Gill Sans MT';">Imagine waking up and not be</span><span style="font-family: 'Gill Sans MT';">ing</span></strong><span style="font-family: 'Gill Sans MT';"><strong> able to walk, talk, or eat.</strong> Our 11 year old son Kevin faces these challenges every day</span><span style="font-family: 'Gill Sans MT';">. </span><span style="font-family: 'Gill Sans MT';">Currently </span><span style="font-family: 'Gill Sans MT';">there is no treatment or cure</span><span style="font-family: 'Gill Sans MT';"> for the disease that causes his debilitating and often painful symptoms</span><span style="font-family: 'Gill Sans MT';">. </span><span style="font-family: 'Gill Sans MT';">Making matters more difficult, we are now told</span> <span style="font-family: 'Gill Sans MT';">that </span><span style="font-family: 'Gill Sans MT';">one of the very few labs dedicated to researching h</span><span style="font-family: 'Gill Sans MT';">is</span><span style="font-family: 'Gill Sans MT';"> disease is at risk of closing its doors, due to lack of funds. Once the doors close, our hope for a cure is gone.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Hope comes in the form of a dedicated research laboratory focused solely on NBIA. NBIA (Neurodegeneration with Brain Iron Accumulation) is a rare, inherited, neurological movement disorder characterized by the progressive degeneration of the nervous system (neurodegenerative disorder). Just one to three people out of 1 million are believed to be affected.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Dr. Susan Hayflick’s </span><span style="font-family: 'Gill Sans MT';">17 year-old </span><span style="font-family: 'Gill Sans MT';">lab at the </span><span style="font-family: 'Gill Sans MT';">Oregon</span> <span style="font-family: 'Gill Sans MT';">Health &amp; Science</span> <span style="font-family: 'Gill Sans MT';">University</span><span style="font-family: 'Gill Sans MT';"> was the first one </span><span style="font-family: 'Gill Sans MT';">ded</span><span style="font-family: 'Gill Sans MT';">icated to finding a cure for this terrible disease. Dr. Hayflick is considered the world expert on NBIA disorders. Her lab has been primarily responsible for the finding of two genes, in 2001 and 2006. In the next few months, this lab </span><span style="font-family: 'Gill Sans MT';">is</span><span style="font-family: 'Gill Sans MT';"> in danger of closing if we do not raise enough money to keep </span><span style="font-family: 'Gill Sans MT';">it </span><span style="font-family: 'Gill Sans MT';">open. NBIA Disorders Association has created the “Hayflick Lab Campaign” to prevent this disaster. </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">This crisis has occurred because funding from the National Institutes of Health for “extramural” research is at an all-time low. Biomedical research labs around the country are closing. These losses will have little measurable impact on investigator communities in cancer, hypertension, diabetes, etc. But for many rare disorders, the entire research community is comprised of only one or two investigators. If they are lost, research comes to a halt. Moreover, the investment needed to rebuild from the ground up will be enormous. This is an especially demoralizing time for investigators, and the impact of lost productivity will be hard to quantify.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Two years ago, Dr. Hayflick and </span><span style="font-family: 'Gill Sans MT';">her colleagues</span><span style="font-family: 'Gill Sans MT';"> aided Kevin’s team of doctors at </span><span style="font-family: 'Gill Sans MT';">UNC</span> <span style="font-family: 'Gill Sans MT';">Hospital</span><span style="font-family: 'Gill Sans MT';"> in developing an experimental course of treatment that proved to be life-saving</span><span style="font-family: 'Gill Sans MT';"> for him</span><span style="font-family: 'Gill Sans MT';">.  We cannot imagine what life would be like today </span><span style="font-family: 'Gill Sans MT';">without their expertise and commitment to this rare disease population.  When </span><span style="font-family: 'Gill Sans MT';">one of the very few laboratories dedicated to researching and understanding </span><span style="font-family: 'Gill Sans MT';">your child’s </span><span style="font-family: 'Gill Sans MT';">disease must </span><span style="font-family: 'Gill Sans MT';">close</span><span style="font-family: 'Gill Sans MT';">, it is truly tragic. Hope is lost for all affected. <strong>We need your help.</strong></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">We are asking for your support. To maintain hope, we must retain this laboratory. To do this, we need to raise <strong>$250,000 by the end of this year</strong>. This amount will allow the lab to </span><span style="font-family: 'Gill Sans MT';">continue</span><span style="font-family: 'Gill Sans MT';"> functioning for the next two years. This then allows the opportunity for government funding to step back in, via NIH grants.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Help us meet this very ambitious goal. With only a few hundred members of the NBIA Disorders Association, we need everyone who receives this to spread the word. Copy th</span><span style="font-family: 'Gill Sans MT';">is</span><span style="font-family: 'Gill Sans MT';"> letter and send it to </span><span style="font-family: 'Gill Sans MT';">everyone you know!  And ask them all to send it to everyone </span><span style="font-family: 'Gill Sans MT';"><em>they</em></span><span style="font-family: 'Gill Sans MT';"> know!  Please give as much as you can so that we</span><span style="font-family: 'Gill Sans MT';"> can </span><span style="font-family: 'Gill Sans MT';">reach</span><span style="font-family: 'Gill Sans MT';"> our goal.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">We have to </span><span style="font-family: 'Gill Sans MT';">reach</span><span style="font-family: 'Gill Sans MT';"> our goal. It’s our only hope.</span><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Please consider contributing to NBIA Disorders Association for the “Hayflick Lab Campaign.” Your donation (no matter how small) is critical and greatly appreciated.</span><span style="font-family: 'Gill Sans MT';"> We believe in miracles; please help us make one happen! </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>Make</em></span><span style="font-family: 'Gill Sans MT';"><em> checks payable to NBIA Disorders Association (memo: “Haylick Lab Campaign”) and mail to:</em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>NBIA Disorders Association, </em></span><span style="font-family: 'Gill Sans MT';"><em>2082 Monaco Ct.</em></span><span style="font-family: 'Gill Sans MT';"><em>, </em></span><span style="font-family: 'Gill Sans MT';"><em>El Cajon</em></span><span style="font-family: 'Gill Sans MT';"><em>, </em></span><span style="font-family: 'Gill Sans MT';"><em>CA</em></span> <span style="font-family: 'Gill Sans MT';"><em>92019-4235</em></span><span style="font-family: 'Gill Sans MT';"><em>.</em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>D</em></span><span style="font-family: 'Gill Sans MT';"><em>onate online at </em></span><a href="https://www.nbiadisorders.org/"><span style="color: #0000ff; font-family: 'Gill Sans MT';"><em><span style="text-decoration: underline;">https://www.NBIAdisorders.org</span></em></span></a><span style="font-family: 'Gill Sans MT';"><em> and learn more about NBIA</em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>O</em></span><span style="font-family: 'Gill Sans MT';"><em>r at the NBIA cause page on Facebook at </em></span><a href="http://apps.facebook.com/causes/NBIA"><span style="color: #0000ff; font-family: 'Gill Sans MT';"><em><span style="text-decoration: underline;">http://apps.facebook.com/causes/NBIA</span></em></span></a></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">You can visit Kevin </span><span style="font-family: 'Gill Sans MT';">on Facebook at </span><a href="http://www.facebook.com/kevinfox.fox"><span style="color: #0000ff; font-family: 'Gill Sans MT';"><span style="text-decoration: underline;">http://www.facebook.com/kevinfox.fox</span></span></a></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">With sincere gratitude for your consideration,</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">The Fox Family – Michael, Wanda, Madeline, Kevin and Kate</span></span></em></p>
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<p><a href="http://www.domingorogers.com/2009/08/07/helping-people-that-suffer-from-nbia-video-link/">Helping People That Suffer From NBIA: Video Link</a> is a post from: <a href="http://www.domingorogers.com">domingo rogers</a></p>
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		<title>Helping People That Suffer From NBIA</title>
		<link>http://www.domingorogers.com/2009/08/06/helping-people-that-suffer-from-nbia/#utm_source=feed&amp;utm_medium=feed&amp;utm_campaign=feed</link>
		<comments>http://www.domingorogers.com/2009/08/06/helping-people-that-suffer-from-nbia/#comments</comments>
		<pubDate>Fri, 07 Aug 2009 03:34:26 +0000</pubDate>
		<dc:creator>Domingo</dc:creator>
				<category><![CDATA[Charity and Donations]]></category>
		<category><![CDATA[Hayflick Lab Campaign]]></category>
		<category><![CDATA[NBIA]]></category>
		<category><![CDATA[Neurodegeneration with Brain Iron Accumulation]]></category>
		<category><![CDATA[neurological movement disorder]]></category>

		<guid isPermaLink="false">http://www.domingorogers.com/?p=107</guid>
		<description><![CDATA[There are some things I could care less about and there are many things I care deeply about.  One thing I am passionate about is summarized in the letter that I have attached below from one of my co-workers.  Please read and consider the difference you could make for Kevin and individuals like him that [...]<p><a href="http://www.domingorogers.com/2009/08/06/helping-people-that-suffer-from-nbia/">Helping People That Suffer From NBIA</a> is a post from: <a href="http://www.domingorogers.com">domingo rogers</a></p>
]]></description>
			<content:encoded><![CDATA[<p>There are some things I could care less about and there are many things I care deeply about.  One thing I am passionate about is summarized in the letter that I have attached below from one of my co-workers.  Please read and consider the difference you could make for Kevin and individuals like him that suffer from NBIA (Neurodegeneration with Brain Iron Accumulation).<span id="more-107"></span></p>
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<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Dear friends,</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><strong><span style="font-family: 'Gill Sans MT';">Imagine waking up and not be</span><span style="font-family: 'Gill Sans MT';">ing</span></strong><span style="font-family: 'Gill Sans MT';"><strong> able to walk, talk, or eat.</strong> Our 11 year old son Kevin faces these challenges</p>
<div id="attachment_124" class="wp-caption alignright" style="width: 233px"><img class="size-full wp-image-124" title="Fox Family Video" src="http://www.domingorogers.com/wp-content/uploads/2009/08/FoxFamilyVideo.jpg" alt="Left to right: Wanda Fox with her son Kevin" width="223" height="126" /><p class="wp-caption-text">Left to right: Wanda Fox with her son Kevin</p></div>
<p>every day</span><span style="font-family: 'Gill Sans MT';">. </span><span style="font-family: 'Gill Sans MT';">Currently </span><span style="font-family: 'Gill Sans MT';">there is no treatment or cure</span><span style="font-family: 'Gill Sans MT';"> for the disease that causes his debilitating and often painful symptoms</span><span style="font-family: 'Gill Sans MT';">. </span><span style="font-family: 'Gill Sans MT';">Making matters more difficult, we are now told</span> <span style="font-family: 'Gill Sans MT';">that </span><span style="font-family: 'Gill Sans MT';">one of the very few labs dedicated to researching h</span><span style="font-family: 'Gill Sans MT';">is</span><span style="font-family: 'Gill Sans MT';"> disease is at risk of closing its doors, due to lack of funds. Once the doors close, our hope for a cure is gone.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Hope comes in the form of a dedicated research laboratory focused solely on NBIA. NBIA (Neurodegeneration with Brain Iron Accumulation) is a rare, inherited, neurological movement disorder characterized by the progressive degeneration of the nervous system (neurodegenerative disorder). Just one to three people out of 1 million are believed to be affected.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Dr. Susan Hayflick’s </span><span style="font-family: 'Gill Sans MT';">17 year-old </span><span style="font-family: 'Gill Sans MT';">lab at the </span><span style="font-family: 'Gill Sans MT';">Oregon</span> <span style="font-family: 'Gill Sans MT';">Health &amp; Science</span> <span style="font-family: 'Gill Sans MT';">University</span><span style="font-family: 'Gill Sans MT';"> was the first one </span><span style="font-family: 'Gill Sans MT';">ded</span><span style="font-family: 'Gill Sans MT';">icated to finding a cure for this terrible disease. Dr. Hayflick is considered the world expert on NBIA disorders. Her lab has been primarily responsible for the finding of two genes, in 2001 and 2006. In the next few months, this lab </span><span style="font-family: 'Gill Sans MT';">is</span><span style="font-family: 'Gill Sans MT';"> in danger of closing if we do not raise enough money to keep </span><span style="font-family: 'Gill Sans MT';">it </span><span style="font-family: 'Gill Sans MT';">open. NBIA Disorders Association has created the “Hayflick Lab Campaign” to prevent this disaster. </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">This crisis has occurred because funding from the National Institutes of Health for “extramural” research is at an all-time low. Biomedical research labs around the country are closing. These losses will have little measurable impact on investigator communities in cancer, hypertension, diabetes, etc. But for many rare disorders, the entire research community is comprised of only one or two investigators. If they are lost, research comes to a halt. Moreover, the investment needed to rebuild from the ground up will be enormous. This is an especially demoralizing time for investigators, and the impact of lost productivity will be hard to quantify.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Two years ago, Dr. Hayflick and </span><span style="font-family: 'Gill Sans MT';">her colleagues</span><span style="font-family: 'Gill Sans MT';"> aided Kevin’s team of doctors at </span><span style="font-family: 'Gill Sans MT';">UNC</span> <span style="font-family: 'Gill Sans MT';">Hospital</span><span style="font-family: 'Gill Sans MT';"> in developing an experimental course of treatment that proved to be life-saving</span><span style="font-family: 'Gill Sans MT';"> for him</span><span style="font-family: 'Gill Sans MT';">.  We cannot imagine what life would be like today </span><span style="font-family: 'Gill Sans MT';">without their expertise and commitment to this rare disease population.  When </span><span style="font-family: 'Gill Sans MT';">one of the very few laboratories dedicated to researching and understanding </span><span style="font-family: 'Gill Sans MT';">your child’s </span><span style="font-family: 'Gill Sans MT';">disease must </span><span style="font-family: 'Gill Sans MT';">close</span><span style="font-family: 'Gill Sans MT';">, it is truly tragic. Hope is lost for all affected. <strong>We need your help.</strong></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">We are asking for your support. To maintain hope, we must retain this laboratory. To do this, we need to raise <strong>$250,000 by the end of this year</strong>. This amount will allow the lab to </span><span style="font-family: 'Gill Sans MT';">continue</span><span style="font-family: 'Gill Sans MT';"> functioning for the next two years. This then allows the opportunity for government funding to step back in, via NIH grants.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Help us meet this very ambitious goal. With only a few hundred members of the NBIA Disorders Association, we need everyone who receives this to spread the word. Copy th</span><span style="font-family: 'Gill Sans MT';">is</span><span style="font-family: 'Gill Sans MT';"> letter and send it to </span><span style="font-family: 'Gill Sans MT';">everyone you know!  And ask them all to send it to everyone </span><span style="font-family: 'Gill Sans MT';"><em>they</em></span><span style="font-family: 'Gill Sans MT';"> know!  Please give as much as you can so that we</span><span style="font-family: 'Gill Sans MT';"> can </span><span style="font-family: 'Gill Sans MT';">reach</span><span style="font-family: 'Gill Sans MT';"> our goal.</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">We have to </span><span style="font-family: 'Gill Sans MT';">reach</span><span style="font-family: 'Gill Sans MT';"> our goal. It’s our only hope.</span><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">Please consider contributing to NBIA Disorders Association for the “Hayflick Lab Campaign.” Your donation (no matter how small) is critical and greatly appreciated.</span><span style="font-family: 'Gill Sans MT';"> We believe in miracles; please help us make one happen! </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>Make</em></span><span style="font-family: 'Gill Sans MT';"><em> checks payable to NBIA Disorders Association (memo: “Haylick Lab Campaign”) and mail to:</em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>NBIA Disorders Association, </em></span><span style="font-family: 'Gill Sans MT';"><em>2082 Monaco Ct.</em></span><span style="font-family: 'Gill Sans MT';"><em>, </em></span><span style="font-family: 'Gill Sans MT';"><em>El Cajon</em></span><span style="font-family: 'Gill Sans MT';"><em>, </em></span><span style="font-family: 'Gill Sans MT';"><em>CA</em></span> <span style="font-family: 'Gill Sans MT';"><em>92019-4235</em></span><span style="font-family: 'Gill Sans MT';"><em>.</em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>D</em></span><span style="font-family: 'Gill Sans MT';"><em>onate online at </em></span><a href="https://www.nbiadisorders.org/"><span style="color: #0000ff; font-family: 'Gill Sans MT';"><em><span style="text-decoration: underline;">https://www.NBIAdisorders.org</span></em></span></a><span style="font-family: 'Gill Sans MT';"><em> and learn more about NBIA</em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em>O</em></span><span style="font-family: 'Gill Sans MT';"><em>r at the NBIA cause page on Facebook at </em></span><a href="http://apps.facebook.com/causes/NBIA"><span style="color: #0000ff; font-family: 'Gill Sans MT';"><em><span style="text-decoration: underline;">http://apps.facebook.com/causes/NBIA</span></em></span></a></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"><em> </em></span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">You can visit Kevin </span><span style="font-family: 'Gill Sans MT';">on Facebook at </span><a href="http://www.facebook.com/kevinfox.fox"><span style="color: #0000ff; font-family: 'Gill Sans MT';"><span style="text-decoration: underline;">http://www.facebook.com/kevinfox.fox</span></span></a></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">With sincere gratitude for your consideration,</span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';"> </span></span></em></p>
<p style="margin-left: 0pt; margin-right: 0pt;"><em><span style="font-size: medium;"><span style="font-family: 'Gill Sans MT';">The Fox Family – Michael, Wanda, Madeline, Kevin and Kate</span></span></em></p>
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<h3 style="margin-left: 0pt; margin-right: 0pt; text-align: center;">In closing, my colleague Michael Fox, his wife Wanda, and their son Kevin will be on the 6:00pm WTVD Channel 11 News on Friday (8/7).  Please watch the news program and again click on the links above to see how you can make a difference.</h3>
<h3 style="margin-left: 0pt; margin-right: 0pt; text-align: center;">(For those of you not in the Raleigh/Durham area, I will post a link to the news segment as soon as it is made available)<span style="font-family: Arial; color: #0000ff; font-size: x-small;"> </span></h3>
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<p><a href="http://www.domingorogers.com/2009/08/06/helping-people-that-suffer-from-nbia/">Helping People That Suffer From NBIA</a> is a post from: <a href="http://www.domingorogers.com">domingo rogers</a></p>
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